So, about 2 years after my diagnosis I was in the hospital for the 3rd or 4th time and during that visit I had a CT scan done of my abdomen, well fortunately it caught the top part of my hip bones and they discovered that I had developed Avascular Necrosis of both of my hips and I was only 20 years old. Devastating news for me at the time because I knew inevitably my hips would fail me and I would need hip replacements we just did not know how long it would take. Unfortunately it did not take long because two years after I found out I had AVN I could barely walk without pain so we had no choice but to move forward with Bilateral Hip Replacements at the age of 20. Over a span of 6 months I had 3 hip surgeries 2 of which were the total hip replacements. That was probably the hardest year of my life to date, an emotional rollercoaster and a very tall mountain I had to climb. Today I am doing well, I have two brand new hips that work well enough for me to live a pretty normal life and I am currently managing my Crohn’s Disease.
Back tracking to 2010 after I started Remicade is around the same time that I created my Crohn’s and Colitis Support Page www.facebook.com/ItTakesGuts. When I started the page it was to meet people with the same diagnosis but its turned into something so much more. We have over 21,000 members to date! I have two people that I brought on to help me manage it who have become some of my closest IBD friends (Jaime Weinstein and Sarah Simkin). I could not run it without them! I have had opportunities that I never dreamed of having such as speaking at conferences, being on Health Advisory Boards etc. I currently am working towards a PhD in Microbiology and Immunology I will be getting a Masters of Biology Research Degree starting in the fall and then going into PhD. I really want to try and mend the gap between IBD Research and IBD patient communities and also do hands on research as well. I could not do any of this without the support from the IBD community, my family and friends. I always loved the quote, “I have IBD but it does not have me” because I do not want my illness to define me I want to have control over my illness and use it to my advantage.
Thank you all for reading this and being there for me and I hope to continue to make a difference in the IBD community as long as I possibly can.
Support Crohn's Disease and Ulcerative Colitis!, Jackson, Mississippi. 21,809 likes · 173 talking about this. Community of people trying to help one...
This is a blog about my trials and triumphs living with Crohn's Disease. I write personal stories about my journey and some helpful blog posts as well.